[mewsicmama]

I just copied the posting at his Carepages site - here it is:
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home....
Posted 9 hours ago
Just wanted to let everyone know that we are home now. I'm so sorry I haven't updated sooner but was having problems with the internet at the Ronald McDonald house, and never got around to posting.

We were able to be discharged to the Ronald McDonald house on the 17th, 1 week and 1 day after the surgery! We stayed there through the weekend, and on Monday brought him back to the cardiology dept. for removal of stitches and clearance to return home. His chest X-ray was very clear, and his EKG looked good. Dr. Rivenes said he should be the poster child for the Fontan, that because of fluid most kids stay for way longer. We were told to expect 3-6 weeks, but actually were out of the hospital after 1 week and home just 1 day shy of 2 weeks. How amazing is that!!

He's doing really well, his appetite is slowly returning. He ate 2-3 bites of eggs this morning, and a few goldfish crackers. That's more than he's been eating all day, for months now. In the hospital, and a RMH, he wouldn't even eat Jello, ice cream, cake, nothing. I'm hoping to see my chunky boy come out again soon....

He is only on 1 whole baby aspirin a day, Lasix twice a day, and Enalapril twice a day, and Xantac until he starts eating better. I can't believe how well he's doing, and how long we've been dreading this surgery and it's "extended stay" at the hospital. I guess Conner figured he'd show them it's possible to leave after a week!

Conner had his first real bath in 2 weeks yesterday! He was only allowed sponge baths because of his incision and drainage tube stitches. Man, did he enjoy it! He still can't "soak" or have the water up to his wounds, but he still had fun just sitting under the running water, and he sure does smell better!!

I've got piles of paperwork, bills, etc. to go through. I can't even imagine what it would be like if we DID have to stay the month they were predicting. I'm so sorry to leave some of you in the dark about his recovery, but I've been updating our facebook way more often, it's so easy just to do it from the phone.

Now that I'm home, I'll try to do better. Conner got so many cards from the hospital, thank you all! They are something that I treasure, and I know he will too, when he gets old enough to understand.

I STILL haven't found the time to sit down with Conner's beads of courage and get them restrung, and I have some awesome custom ones that were generously made for us, from some extremely talented and wonderful people that I met on a lampworkers forum. I've gotten Conner's tennis shoe, to represent his missing the heartwalk, and the bed, to represent his nursing home stay, and a bead with a hole in it, to represent this surgery coming out of nowhere, and a heart with stitches on it, and 2 people are working on beads to represent our nights at the Ronald McDonald House, and a doctor bead, for Dr. Mott leaving TCH.... I can't wait to get them all done, I just can't find the time right now to restring them!!

Thanks for keeping up with us, and hopefully for years to come all my updates will talk about how wonderful Conner is doing, with sats in the 90's, woo hoo!!!

Tamara