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Old 2015-10-21, 5:32am
Hearts4Brooklyn Hearts4Brooklyn is offline
Daddy loves you!!!
 
Join Date: Oct 21, 2015
Location: Reno, nv
Posts: 7
Default Looking for artist to help!

Hello, my name is Jason, me and my family were fortunate enough to spend four months with the strongest and most inspirational human I've ever known! Our daughter, and little sister, Brooklyn Ciera Price! She had a rare heart condition called Ebsteins anomaly, we were uprooted and moved 200 miles from our home, to a place with people, that are very dear to my heart! If it wasn't for the amazing staff at Lucile Packards Children Hospital or Stanford Hospital, for those that didn't know Stanford had a children's hospital. We never could have had the time we did! Plus I want to publicly thank the Ronald McDonald house, for all that they do! As well as Southwest Airlines, for trying to make travel as easy as possible since I still had to work to keep our lives moving, while mom and sister stayed for the whole time plus a month early because she couldn't have the baby where we live, (just not experienced enough here)!

During our stay, we noticed a string of beads next to her Heart monitor. When we asked about them, it was the first time I'd ever heard of your organization! Over the next few months the string grew and grew into four separate 3ft strings, unfourtantly three were taken by a person with no heart! Or a very small one! At least we still have her first string with her name and original �� on it.

It's been over three years since we lost our angel to her fight! I just happened to be cleaning out our extra bedroom closet,(making room for Brooklyn's new brother due in February 2016) when I found her string we still have! It's been in a special box with her first teddy, and other special things! Not anymore!!! I'm going to wear it every day for 4 months, the exact length she was with us! I found your site because I was looking for a color and bead guide, because I couldn't remember what most stood for.

So if anyone has that info I would greatly appreciate it! Also I see something about a butterfly bead, that we never recived, but will gladly pay to receive one or possibly even three, one for each of us. If I had a bead guide I would know which ones were taken and work on getting them replaced. I know we(I should say she) lost 2 surgery beads, for stints in her heart, all of her EKG beads, her dialisis beads,and at least 75+ overnight beads, probably 70+ pokes and test beads, and not sure about the rest, until I get a guide. Also was wondering about the sibling beads???

Also, I'm searching for a glass artist to possibly make 10 very special beads for me. I'm looking to have 10 beautiful heart shaped glass beads, must be thick enough to be worn forever, with a pinch of her ashes inside so, Sis, Mom, both sets of grandparents, her new lil bro, and our main Doctor, and most trusted and favorite nurse, and me of course, can always have her as strength when it's needed in life! If you or anyone you know can help please let me know, I will pay for any an all costs!!! Just really need this done ASAP, I want to surprise everyone on her birthday if possible???

I also just learned that one of my local hospitals is a BOC hospital! How do I donate my time, help, distribute, teach, people here about this wonderful program??? Sorry if it was long winded or to much for one post but I miss her every day! I needed to get it out I guess, to share her story, to do something positive in her name, because she was that kind of soul that would not just want but expect us to be better!


Thank you for reading this!


Brooklyn, just remember. We all love you down here and look forward to seeing you again someday, till then keep looking down, because we will keep looking up!
LOVE FOREVER,

Mom, and Dad

Last edited by Hearts4Brooklyn; 2015-10-21 at 6:40am.
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