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Beads of Courage -- Discussion for all things Beads of Courage; the only not-for-profit, arts-in-medicine program putting to use the talents of glass beadmakers to uplift children dealing with life threatening illnesses, their families and the people who care for them. Families, clinicians and artists alike are welcome to join in! (Thank you to Lampwork Etc. for supporting Beads of Courage and helping to foster communication!) PHOTOS OF INDIVIDUALS OR CHILDREN ONLY ALLOWED WITH THEIR SPECIFIC CONSENT.

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  #1  
Old 2010-04-20, 5:35pm
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RSimmons RSimmons is offline
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It's one of those strange twists of life. One of the kids on our local program lived across the street from my office manager. He had Ewing's sarcoma. I'd made a special bead for him and tracked his progress for a good while. He lost his battle and passed quietly on Friday night. He was a big Red Sox fan and I made a special butterfly bead for his mom tonight that included that concept. It's always hard to lose one of our kids.

Robert
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  #2  
Old 2010-04-20, 5:45pm
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Robert,

There are no words to say how sorry I am that a child has lost this battle. Just know that you are not alone in your caring.

Hugs,

Sue
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Old 2010-04-20, 6:19pm
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Robert, I am so very sorry. ((hugs))
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It's always so hard because these kids are incredibly brave and become a part of your heart. There were two very special kids I had a connection with who passed within days of each other and the news was like a sucker punch to the gut each time. I still have the sweet letter from one of them on my desk.

Your beads will honor their memory and will help to comfort their family in the years to come. You are one of the good guys Robert and I know you made a difference in his life.
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Last edited by CarolS; 2010-04-20 at 7:53pm. Reason: finished my thought
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Old 2010-04-20, 8:21pm
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Robert, I am so sorry! One of the things they always tell us when we start working in the hospitals is "don't get attached.." They just don't know what they are talking about. How do you not and remain human, compassionate? It's that compassion that makes you so good at what you do. Cherish what that small life brought you and know that you brought him so much more!
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Old 2010-04-20, 8:29pm
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Old 2010-04-20, 11:04pm
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so very sorry.....
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Old 2010-04-21, 3:56am
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I'm very sorry Robert
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Old 2010-04-21, 5:06am
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One of the hazards of making special beads is that it does create a different sort of bond. This isn't the first and unfortunately won't be the last that I've lost like this. You always hope that it'll be OK. I keep making special beads and regular beads to bring a little light in where I can.
Thanks much to all of you who help us continue even when it's a sad day.

Robert
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Old 2010-04-21, 9:15am
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My heart goes out to you and their family, Robert. I know that they had to be truly blessed by your connection with them, your special beads for their child and the wonderful butterfly bead you made. I hope you have one for yourself as well, in his memory.

Big hugs to you.
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Old 2010-04-21, 12:11pm
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Robert, my thoughts go out to you and to that child's family. Its always hard to lost someone close to you; an associate, a friend or a family member.

The up side to this is that he can now meet and talk baseball with all the Red Sox greats that have passed on before him!

Duane
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Old 2010-04-21, 1:28pm
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Here's the bead that I made last night.

Robert
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Old 2010-04-21, 2:40pm
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Robert, what a beautiful bead. I am so sorry to hear of the Child's passing. It is a bittersweet task you have undertaken, but you do so much good and comfort so many.
Hugs to you and the family.
Mary T.
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Old 2010-04-22, 2:50pm
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Oh Robert that bead is beautiful !!
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Old 2010-04-22, 7:19pm
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Robert
Just last weekend my group got together and made beads to send.
We had a great time and fellow shipped and enjoyed each others company. But your story brings it home. I am just so sorry. I am battling BC and it has been a long road. But I am an adult, I can reason, be strong but for a child to go thru this I am so saddened. Stacy
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Old 2010-04-22, 7:21pm
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Gorgeous! I'm sure the family will be touched by your kindness.
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Old 2010-04-23, 12:31pm
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I'm so sorry...
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